I hate them. It's like they are keeping Ben hostage. He is trying so hard to move and develop and learn. Every time he has a seizure, it just wipes him out. It wipes out his memory, his learning, and saps his energy. We still have a week and a half on Lamictal, the latest drug that we're trying. So far it doesn't seem to be working.
Luckily for him and us, Ben is still a happy little guy. Smiling all the time. He turns pages on books now!! Very exciting. We are told by every therapist who meets him that he's a quick learner. He just needs a break from these lightning storms in his brain.
It's been 14 months and 2 weeks since his first seizure. During these 14 months and 2 weeks, he has had anywhere from multiple seizures daily to 2 seizures a week. That's A LOT OF SEIZURES!!! Why can't we get them to stop? What else can we do? How much longer is this going to go on?
