I never know what to say

It's hard to decide what to share on this blog. On the one hand, I want to share everything - including all the pain - but on the other, I want to focus on the positive. Well, I'll do both this time. The pain includes the fact that Ben has stopped eating. He has a seizure every time he eats, so my guess is, he's associating eating with seizing and doesn't want to have a seizure. He used to eat with gusto, so this is really sad to me. I don't blame him, I wouldn't eat if it caused a seizure either. He has lost 1.5lbs in the last month, which is very concerning. Luckily, he's still drinking from a bottle, so I can try to get calories in him that way. I've been giving him formula with cream. I bet that is tasty. He's also a lot fussier than usual - is that because he's hungry? Or because he's teething? I have no idea.

On the positive side, he's become more active in general. He's shaking toys with his right hand, he's reaching out more, he's sitting up very stably, and he's babbling a little. I'm trying to figure out a way to stimulate him all the time. We are even thinking of converting one of our rooms into a gross motor development room, complete with a tire swing hanging from the ceiling!

A new therapist named Cheryl

Ben is seeing a new therapist - Cheryl Eichner. She is amazing with him. Ben moves and shakes during those sessions like I've never seen him move or shake! Cheryl says he's all boy, and really wants to move. He just doesn't know that he can... yet. With Cheryl, he rings bells, he pulls knobs, he goes for it. She tells me that he will do that at home too, eventually. I can't wait. In September, I really thought he'd be crawling by Christmas. We still have 3 weeks. Go Ben!!!