Thursday, February 24, 2011
Thursday, February 17, 2011
Good Days
Ben has been doing so well lately. He's been more alert than ever. He is reaching for toys and hair and everything around him. Yesterday he pulled off Nana's glasses - repeatedly. It made us both smile :) He also gives kisses, initiated all on his own. It is the sweetest kiss in the world.
We went to story time at the library yesterday. Ben was interested in everything going on around him, listened to the music and the stories, and watched the other kids. It was such a relief. I almost felt like a "normal" person. That constant anxiety I'd been feeling for over a year now was gone for that hour. I just sat and enjoyed Ben being able to participate in story time. It was wonderful. More than wonderful.
Ben has only had one small seizure in the last 5 days. It should be a good time for us, and it is, but I know not to be fooled. I know this intellectually not emotionally. The odds are against us. But there is always that chance that this time it will be different. Nonetheless, I'm trying to prepare for what seems like the inevitable storm to come.
We went to story time at the library yesterday. Ben was interested in everything going on around him, listened to the music and the stories, and watched the other kids. It was such a relief. I almost felt like a "normal" person. That constant anxiety I'd been feeling for over a year now was gone for that hour. I just sat and enjoyed Ben being able to participate in story time. It was wonderful. More than wonderful.
Ben has only had one small seizure in the last 5 days. It should be a good time for us, and it is, but I know not to be fooled. I know this intellectually not emotionally. The odds are against us. But there is always that chance that this time it will be different. Nonetheless, I'm trying to prepare for what seems like the inevitable storm to come.
Tuesday, February 8, 2011
Chloe is as busy as ever
Tonight, while I was laying in bed with Chloe, helping her get to sleep, she says, "Mom, don't you want me to have fun?" I say, of course, I do. And she says, "well, then get me a horse. Without a horse, I can't have any fun." I say, what about the carousel (her favorite activity!). "No, boring". What about the roller coaster (her first ride last week with Captain was so exciting, she talked about it for days). "No, boring". What about ice cream? "No, boring". What about skiing (she is excited to go skiing this winter). "No, boring". And on and on, she held steady to her declaration that she would only ever have any fun again if she got a horse.
I tried to distract her by telling her I had a special song for her. Which, of course, I was making up on the fly. As I'm not very musically inclined, I ended up singing my own made up words to some familiar song. Chloe (a 3 yr old, mind you!) says, "Mom, what's that tune? That's not a special song, what's that tune?" Tune? How does she even know the word tune? I don't use the word, I didn't even consciously realize that I had picked a specific tune to sing my words to. Then she figured it out. "Moooom, that tune is 'You are my Sunshine'! That's not a special song for me!" I think I'll enroll her in a singing class.
I tried to distract her by telling her I had a special song for her. Which, of course, I was making up on the fly. As I'm not very musically inclined, I ended up singing my own made up words to some familiar song. Chloe (a 3 yr old, mind you!) says, "Mom, what's that tune? That's not a special song, what's that tune?" Tune? How does she even know the word tune? I don't use the word, I didn't even consciously realize that I had picked a specific tune to sing my words to. Then she figured it out. "Moooom, that tune is 'You are my Sunshine'! That's not a special song for me!" I think I'll enroll her in a singing class.
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