Dear Family and Friends,
Just a little more than 2 months after the surgery now. Ben had a run of seizure-free weeks post-surgery - about 6. The seizures came back suddenly and fiercely about 3 weeks ago. Our doctors say that we won't really know the outcome until about 6 months have passed. So, we remain hopeful that it will still change. In fact, the last two nights, the seizures have been shorter. Maybe it will last?! Maybe it will get better, maybe it will get worse. We seem to have little control over it so we are not going to fret. I just wrote a short piece for the Orion BioNetworks newsletter on our experience with epilepsy and the need for a new approach to research on this complex brain disease. I've been working with Orion to start a project in epilepsy because I believe their approach is the most likely to yield an understanding of epilepsy that will make a meaningful difference to patients. I'd like to share it with you: http://www.orionbionetworks.org/2015/04/01/state-of-mind-epilepsy-a-mother-and-scientist-advocates-f...
All my best,
Catherine
