Ben had his mid-week seizure today. He has been having them regularly every Tuesday or Wednesday, and then again on Saturday. We were hoping this pattern would change on the ketogenic diet. Some good news is that instead of a cluster of 40 or 50 seizures lasting 10 or more minutes, this one only lasted for about 5. It also seemed less intense for him. Apparently, the quality of his seizures will continuously change as his brain grows, so it's hard for his neurologist to admit to us that this lesser intensity is a sign that the diet is working. But it's hard to believe that it's unrelated! So, there is definitely still hope for the ketogenic diet.
On a happier note, Ben got his first tooth today! It's his bottom right one, and it broke through during the night. HIs bottom left tooth is also about to pop out. I remember Chloe not getting her first tooth until about 10 months too... But I don't remember her being so grumpy about it! Is it true that boys have a lower pain threshold than girls? ;)
4 comments:
Catherine - this is such a wonderful way for us who have wandered far from SF to feel close to the day-to-day. Keep it up mama.
I am hopeful too-thanks for doing this blog - can't wait to see you all soon xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoAuntie Kathy
awe. little baby teeth. fingers crossed that the diet is working!!!
There have already been changes in Benjamin's seizures since the start of the Ketogenic Diet. It is so hard to have patience but the diet is going to work!! Positive thoughts are important (reminder from my friend Peggy!!) Nanna
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