Wednesday, May 5, 2010
Seizure Update
Ben had another seizure last night and it is truly heartbreaking. He's aware of when it starts now and sobs. It's the worst position a parent can be put into - not being able to help your sobbing child. We have been decreasing his topamax - the only medication he's on - to see if he really needs to be on the very high dose he's on. We initiated that decrease with his doctor after hearing from an adult who has taken topamax that it made him feel "stoned". Not a great medication for a developing brain to be on, eh? So far he has tolerated a 33% decrease really well. In the last 4 days, he's only had one seizure. That's great news!
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6 comments:
you are amazing ♥ and Ben is so lucky to have you as a parent.
That sounds to horrible.....so sorry! I agree with Anna - he is very lucky to have you as his mother!. Poor Ben Ben! Sending lots of love!!!!
i'm so sad to hear this, catherine - i'm thinking of you all. xoxoxo.
It breaks my heart to know that the most sensitive, caring woman I know has to go through such pain. Catherine, you have been and will always be an inspiration to me!! Yes, Ben is so lucky to have you as his Mom- and so is that adorable Chloe. Happy Birthday to Ben and a very happy Mother's Day to you. Stay strong- love you! xoxoxo
Happy Birthday Ben.....Thank you Catherine for this wonderful blog...I check on Ben frequently.
To My Dearest Catherine,
Everyday I see you as a mother to Chloe and Ben-Ben. Your love, kindness and thoughtfulness are abundant. Benjamin is going to grow to be a special person in this world. You can see it in his eyes.
With much love, Nanna
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