Saturday, June 12, 2010

Another seizure today

Oh boy. Now I am worried. Another seizure within a week. This one was longer than the one last Sunday. I wish I weren't so worried. I wish I could handle it better. I just don't want Ben to have to live with Epilepsy. Life is hard enough. Can you imagine adding unpredictable seizures to the mix? He won't be able to take a bath alone. He won't be able to learn how to ski. He won't ever get to play High School Sports, be on the Rowing Team, swim, get a driver's license. I remember being a gate agent at the airport when someone in the wait area had a seizure. He convulsed on the floor, and then woke up surrounded by strangers who had just witnessed his seizure. I can't even imagine what it would be like to have that happen to you. I'm sorry this post is so depressing. I've tried very hard to only focus on the positive, especially in these blog posts. Today I'm just not feeling very positive. I worry for Ben. I worry for Chloe. I even worry for Aaron.

4 comments:

Unknown said...

My Dearest Catherine,

Of course you are worried for Benjamin and seeing him have seizures is heartbreaking but I know in my heart he is going to be a special person. I do not know exactly what or how but he will be.

Love, Nanna

EWingate said...

I'm so sorry that things aren't better. I haven't had a chance to respond to your email yet, but I will. Just know that you are one amazing person. You are a wonderful mother and you are doing everything that you can to help Ben...and even help my family. I wish I could do something to help make things easier, but I will certainly pray for you, Ben and your family. Hang in there....

ANewKindOfPerfect said...

I'm new to your blog, I saw a link on another blog. My daughter has seizures, and I hate them. I can't imagine how these little ones must feel coming out of a seizure. How disoriented, scared, icky. I hate seizures!

I hope that you are able to get control of them for your little Ben. He is absolutely adorable!

Stacy said...

Im sorry Catherine, I am always thinking of you guys, I cant even imagine what you are going through, I think you are doing a fantastic job. Sending lots of love your way.
xoxo