Wednesday, June 16, 2010
More seizures
The seizures have returned. Ben has had 3 seizures in the last 4 days. It is such a bummer. I try to be grateful for everything that we do have - smiles (lots of them!), eye contact, movement, sounds, ability to eat. It could always be worse. Can you believe, though, that after almost a year of this, I still find myself getting hit full force with the reality of his life? Some days it feels like a punch in the stomach.
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2 comments:
My Catherine;
You are the strongest woman I know. I cannot fathom what you go through every live long day- but I know that Ben is your beautiful boy and with you as his Mom, he will achieve what he is capable of. Please take care of yourself in this tumultuous time- you have a wonderful husband,daughter and family. They love you very much- as do I. Keep your chin up! love you- Danielle
I'm sorry to hear that Ben is having seizures again. What a roller coaster of emotions! It must be exhausting to bounce from hope & healing to frustration & disappointment all the time. Love you and think of you often. Ben is in my thoughts and prayers ♥
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