Ben had a seizure on Sunday - after 17 seizure-free days. It was a quick seizure, not at all as devastating as they had been. So that's great news. This time is critical - if they continue to abate, it is really, really good news. But, as Dr. Sullivan says, 3 weeks is just too early to tell. We just keep hoping for more and more seizure-free days.
It's hard to know what is working for Ben. Is it the acupuncture? Is it the medications? Is it growth? At one point - which seems like an eon ago - Dr. Sullivan did say that there was a chance that he would outgrow the seizures. He said it was a small chance, and that they could come back at any point in his life, but it is still a chance.
Developmentally, Ben is progressing wonderfully. This is a huge lesson in patience for me (I don't know if y'all know this about me but I've always said, "Patience is a virtue - just not one of mine"). People who haven't seen Ben in a while can really see the progression. He is pushing up on his hands more, reaching out for toys (VERY exciting), pivoting in circles on the floor (an important precursor to crawling) and sitting better. He still falls over from a sitting position, but his therapists believe that is because we are always there to catch him. So the prescription is - don't catch him, and then make him do a situp to get back to sitting. Hopefully that will discourage him from relying on us. No one likes situps!!
6 comments:
To Dearest Catherine,
My brother, CW, just got rid of his heart "flutters" and he must have sent them directly over to me. My heart definitely "fluttered" when reading your blog!! You are such a heartfelt mother!! I just know Ben-Ben is going to be a star!!!
With much love,
Nanna
17 days! that's awesome. and it's so great to hear about ben's progress. i think it's true that babies don't learn to do things if they always have someone there to do it for them!! i feel that way sometimes, and i'm 30! chloe's birthday pictures were priceless, by the way (uncle rich sent them). xoxoxo.
Great news!! It sounds like he is getting better and better ♥ I'll keep my fingers crossed!
Well that is very exciting news I am so happy for you all! Go Ben!!! What a strong little boy you are. Keep up the amazing progress. Love, Stacy
Catherine that is so great! I'm sure Ben-Ben will be moving and shaking in no time! What a sweetie...
Love, Sarah Elizabeth
Over three weeks now, with just the one small one! Certainly a real plus, on top of his progress physically. Love you, Dad
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