It's hard to decide what to share on this blog. On the one hand, I want to share everything - including all the pain - but on the other, I want to focus on the positive. Well, I'll do both this time. The pain includes the fact that Ben has stopped eating. He has a seizure every time he eats, so my guess is, he's associating eating with seizing and doesn't want to have a seizure. He used to eat with gusto, so this is really sad to me. I don't blame him, I wouldn't eat if it caused a seizure either. He has lost 1.5lbs in the last month, which is very concerning. Luckily, he's still drinking from a bottle, so I can try to get calories in him that way. I've been giving him formula with cream. I bet that is tasty. He's also a lot fussier than usual - is that because he's hungry? Or because he's teething? I have no idea.
On the positive side, he's become more active in general. He's shaking toys with his right hand, he's reaching out more, he's sitting up very stably, and he's babbling a little. I'm trying to figure out a way to stimulate him all the time. We are even thinking of converting one of our rooms into a gross motor development room, complete with a tire swing hanging from the ceiling!
1 comment:
I like it all - the good, the bad and the ugly. So keep it all coming. I find it is our vulnerability that connects us with each other - suffering and pain is part of that, so let us have, the full kit and kaboodle!
We had a great time down in San Carlos last night, looking at the Christmas lights. Ben does look great. Every time I see him he seems to have progressed in some fundamental ways. This time it was really in how interactive he is. Daina and I both noticed the joy he expressed when we were dancing with him.
With lots of love,
Brac
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