Sunday, December 5, 2010
A new therapist named Cheryl
Ben is seeing a new therapist - Cheryl Eichner. She is amazing with him. Ben moves and shakes during those sessions like I've never seen him move or shake! Cheryl says he's all boy, and really wants to move. He just doesn't know that he can... yet. With Cheryl, he rings bells, he pulls knobs, he goes for it. She tells me that he will do that at home too, eventually. I can't wait. In September, I really thought he'd be crawling by Christmas. We still have 3 weeks. Go Ben!!!
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5 comments:
Yay for Cheryl! I googled her...she sounds great and Ben's doing things with her. So thrilling. Keep on moving, Ben!
Yay! Go Ben Go!!
yay!!! let's get some videos of ben ben up here!!
I agree let's get some video of that! I want to see Ben in one of his laughing fits.
Hi Catherine, I'm just catching up on Ben's story. I saw Dave in New york in Sept and he filled me in on some of it. Of course my heart breaks for you and your whole family, again and again with every post I read. But mostly my heart breaks for Ben. As you probably know, I'm a brain damage survivor (from a massive stroke/closed artery in my brain). Against all odds (75% of people in my boat are dead, the rest are in long term care facilities) I can walk, talk, work, laugh and generally be myself, but there were stretches where none of that was possible. So I'm one of those sappy people who believes in miracles. Reading through all your posts over the past few years I am struck by how resilient and incredible you are as a mother, you clearly believe in him and see the Ben behind the seizures. My Mom saw the "me" behind the brain-damage I was struggling to emerge from, and she talked/worked with that person, and it meant the world. You have never given up on him despite what it costs you. To me that seems like the most important thing. Your love and faith in him is everything. It sounds like he is always fighting to come out, to explore and learn and somehow emerge from this to be the boy he is outside these seizures and the fall out from them. I wish I knew why some of us get a harder path than others. I don't know, but I know the struggles I've been through were a gift to me, and there is just no other way to put it. That must sound so cheesy, and I apologize for sounding like a cliche. I'm not trying to say that your son's struggles are a gift, but your time with him is, and his triumphs and set backs, when shared with his family with love are what being alive here on this planet is all about (IMHO). I think maybe that's the best this life has to offer. I pity people who haven't suffered or really been challenged and don't know how tenuous this whole thing is, how temporary, or can't see the beauty in the pure love that comes out of this whole messy imperfect thing called life. You love Ben, his sister loves him, his dad loves him, his therapists and doctors try their best to help him. His whole family surrounds him with support and love. To me that seems like a really good life for whatever it's worth. I don't pray for specific outcomes anymore, I pray for strength and grace to handle the cards I'm dealt, so that is my prayer for you and your family. Seems like you already have it in spades.
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