Ben has been doing so well lately. He's been more alert than ever. He is reaching for toys and hair and everything around him. Yesterday he pulled off Nana's glasses - repeatedly. It made us both smile :) He also gives kisses, initiated all on his own. It is the sweetest kiss in the world.
We went to story time at the library yesterday. Ben was interested in everything going on around him, listened to the music and the stories, and watched the other kids. It was such a relief. I almost felt like a "normal" person. That constant anxiety I'd been feeling for over a year now was gone for that hour. I just sat and enjoyed Ben being able to participate in story time. It was wonderful. More than wonderful.
Ben has only had one small seizure in the last 5 days. It should be a good time for us, and it is, but I know not to be fooled. I know this intellectually not emotionally. The odds are against us. But there is always that chance that this time it will be different. Nonetheless, I'm trying to prepare for what seems like the inevitable storm to come.
3 comments:
Enjoy the good days! I'm so glad you and Ben are getting a little relief.
Love you!
Teresa
Hi Catherine. Your writing is so beautiful, and painful too. It's nice to hear that Ben is in a good space, you are right, enjoy it while it lasts. You are not missing our muddy yards in the Presidio right now. We love you guys. xoxo Christine
I'm glad that Ben is having good days! They are to be treasured. :)
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