Ben has been doing amazingly well! I refuse to be superstitious so I will write about it. But there's a small piece of me that is of course afraid that as soon as I write about this good turn of events, it will be over. But, since I refuse to be superstitious, here goes. Ben hasn't had the kind of seizure where he goes unconscious in over two weeks! Even the small seizures have gone down in frequency. He's had two completely seizure-free days lately. I wish I had something to attribute this to. As I don't, it feels very temporary. Seizure frequency and severity have been unrelated to the drugs. We've even been reducing his Lamictal dose very, very slowly.
Developmentally, he is advancing as well. He's stronger than ever. He's more alert and interactive. He has started protesting therapy and gives us a lot of attitude! He fake cries and looks at me to rescue him. It makes me laugh. It's great to share some good news.
3 comments:
Catherine, So glad to hear some
good news for Bend & the rest of you! I sure hope this good trend continues. Happy Easter!
Teresa
so happy to hear the good news. and ben looks so big and grown up! can't wait to see you guys soon. xoxoxo.
I have a friend that have a 6 year old girl and a 4 year old boy also with special needs. Very similar story. Please allow me to offer you this beautiful message:
Peace in You
Peace is very important.
Governments impose it by fomenting wars, exerting pressure, and subjecting people to bondage.
Therefore, peace is negotiated in private offices and then maintained under arms, through fear.
Such peace comes from without, and is disturbing because it is unreal. It is legal, though not always
moral.
It is similar to swamp waters: clear and placid on the surface, but murky and poisonous at the bottom.
Such is the peace of the world: fleeting, and deceptive.
Real peace comes from within a cheerful heart and an understanding mind which acts, and trusts.
It is achieved within an atmosphere of love and devotion, because the harmony which kindles the
dynamics of a flourishing life derives from a conscience illumined by Divine Laws.
Such peace is permanent and is never disturbed.
It constrains not, imposes not.
Each person must strive to achieve it. It is an outcome of one’s well-directed actions, and it fosters
noble ideals.
To discuss peace or crusade for it is not enough.
But if you focus your mind on peace, think about peace, and act pacifically, you will externalize
peace from your inner self, and then it will surround you and reach whoever comes near you.
So, may peace on Earth be your uttermost goal, and through constant prayer may it work outwards
as an answer from God.
When you pray for peace, a tender feeling pervades you, and Love – which radiates from God –
averts any conflict that might disturb you.
Peace within you will further peace in the world.
Joanna de Angelis
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Inspirational message by Divaldo Pereira Franco from the book Child of God.
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