We have decided to go ahead with the surgery to implant the VNS in Ben. It is scheduled for August 19th. It was a tough decision to come to, but given how the seizures are impacting Ben's life, and the possible benefits, we think it is a good decision.
However, August 19th seems too long to wait for another potential intervention. Ben's seizures have returned full-force. He's having 7-10 seizures a day again. So, in the meantime, we are trying the last drug available to him. I'd been holding out on this drug - partly because of its potential fatal side effects (always very scary, however low the odds), and partly because it was a hope I was reserving for bad times. Those bad times are here, and I'm willing to use that last hope now. I really, really hope it helps him. We started yesterday, and only time will tell...
3 comments:
Catherine,
I am so sorry that you are struggling so. It sucks so bad that these seizures are not under control. Ughh! It seems like jsut when you make some progress everything comes tumbling backa again. I can't imagine how much that sucks. Daina and I aare sending all of our love and support.
Lots of love,
Brac
My Dearest Catherine,
How sad it makes me to see you go through the pain of life. But how proud I am of you as a human being. You are truly a special person and Chloe and Benjamin are so fortunate to have you as their mother. Just as I am fortunate to have you as my daughter.
With love always, Mom
Catherine,
These are some tough tough decisions! Hang in there and you are a great Mom!!! I am thinking of you, Ben, Chloe and Aaron!!!! I am sending lots and lots of love!!!
Love Elizabeth
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