Friday, March 19, 2010
Ben's Appointment at Stanford Today
Ben had his first follow-up appointment at Stanford today. Though the seizures are continuing to happen regularly, they seem to be lessening in intensity and length. They now say that could be a good sign. They've also adjusted his formula so that he will enter into a stronger level of ketosis. We monitor his ketone levels twice daily and they have not always been large, so there's some tweaking of the diet to be done. All in all, they were hopeful. They saw no reason to rule out yet that the diet will not work, so that leaves us with hope! We love hope. I am breathing a lot today :) in and out, in and out, in and out.
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4 comments:
just love to see the laughing picture of Ben - give Chloe and Ben xoxoxoxoxoxoxoxoxoxoxoxoxoxoxooxoxoxoxoxoxoxokathy
I hope things continue to get better! I so know the "in and out, in and out" reminder to breath. We are headed to MUSC this week for a second opinion for Logan. Will continue to keep you guys in our prayers!
you're doing Great momma. Give those little pumpkins kisses!! xoxoxo
Yes - keep breathing! One day at a time! Sending lots of keton love!
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